Quick Info

Why: Raising Funds to Support the MLD Foundation and Ashley's Fund

Date:Saturday June 27th, 2015

Time: Check-in & on-site registration from 7:30-9:00am, walking starts at 8!

Where: Glenwood Gardens...
map here


What: A 5k walk suitable for the entire family.

Registration is closed for this year's event, but you may still donate: Donate










 

Please join us Saturday morning June 27th to CELEBRATE ASHLEY by enjoying a walk, through Glenwood Gardens while raising funds for the MLD Foundation and Ashley's Fund.

Registration is closed for this year's event, but you may still donate: Donate


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toddlerWho is Ashley?
Ashley Steingraeber is a sweet 7 year old who was diagnosed in 2010 with Metachromatic Leukodystrophy (MLD). MLD is a genetic disorder that affects nerves, muscles, and other organs. It is a degenerative disorder with no cure. The 5K walk is a 3.1 mile course through 335 acres of scenic Glenwood Gardens. For those of you who want a shorter “walk in the park”, several cut-offs will provide a shorter course.

MLD Foundation logoAshley's 5K Walk will begin and end at Glenwood Gardens ... 335 acres of beautiful gardens, discover, and fun located at Route 4 at the intersection of Glendale-Milford Road in Woodlawn: 10397 Springfield Pike, Cincinnati OH 45215.

Who benefits from Ashley's 5K Walk?MLD Foundation logo
There are two beneficiaries ... the MLD Foundation and Ashley's fund. Donations are split 50/50 with 1/2 being a tax deductible gift to the MLD Foundation and one half to Ashley's Fund is for her ongoing care and medical expenses - (the portion of your donation made to Ashley's fund is not tax-deduct able). The MLD Foundation is a non-profit 501c3 serving MLD families, increasing awareness, and influencing research for metachromatic leukodystrophy in the US and around the globe. Learn more about the MLD Foundation here. Gifts to the MLD Foundation are tax deduct able. You will receive a receipt with all donation details.

What is Metachromatic Leukodystrophy?
Metachromatic Leukodystrophy (MLD) is a rare, inherited disease. People who are affected by MLD lack an enzyme in their blood called Arylsulfatase-A, (ARSA). Without this enzyme, sulfatides are NOT broken down and instead build-up in the white matter of the brain and the rest of the body causing destruction of the myelin sheath (demyelination). Without an intact myelin sheath there is a breakdown in communication between the nerves and the brain resulting in a progressive loss of physical and cognitive skills leading to early death. There is no cure yet, but with increasing research there is hope! Although quite controversial, we've found studies and reports that claim a well controlled keto diet can also help with this. There are plenty of fantastic ketogenic recipes online, such as the ones provided by Ruled.Me which we recommend to parents who come to us for advice.
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Join this year's fun!

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