Please join us Saturday morning June 19th to CELEBRATE ASHLEY by enjoying a walk, through Glenwood Gardens while raising funds for the MLD Foundation or Ashley's Fund.
Who is Ashley?
Ashley Steingraeber is a sweet 2 year old that has just been diagnosed with Metachromatic Leukodystrophy (MLD). MLD is a genetic disorder that affects nerves, muscles, and other organs. It is a degenerative disorder with no cure. The 5K walk is a 3.1 mile course through Glenwood Gardens. For those of you who want a shorter “walk in the park”, several cut-offs will provide a shorter course.
Ashley's 5K Walk will begin and end at Glenwood Gardens ... 335 acres of beautiful gardens, discover, and fun located at Route 4 at the intersection of Glendale-Milford Road in Woodlawn: 10397 Springfield Pike, Cincinnati OH 45215.
Who benefits from Ashley's 5K Walk?
There are two beneficiaries ... the MLD Foundation and Ashley's fund. The MLD Foundation is a non-profit 501c3 serving MLD families, increasing awareness, and influencing research for metachromatic leukodystrophy in the US and around the globe. Learn more about the MLD Foundation here. Ashley's Fund is for her ongoing care and medical expenses - (donations to Ashley's fund are not tax-deductable).
What is Metachromatic Leukodystrophy?
Metachromatic Leukodystrophy (MLD) is a rare, inherited disease. People who are affected by MLD lack an enzyme in their blood called Arylsulfatase-A, (ARSA). Without this enzyme, sulfatides are NOT broken down and instead build-up in the white matter of the brain and the rest of the body causing destruction of the myelin sheath (demyelination). Without an intact myelin sheath there is a breakdown in communication between the nerves and the brain resulting in a progressive loss of physical and cognitive skills leading to early death. There is no cure yet, but with increasing research there is hope!
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